Allison J.

I am not sure who those people are who are giving this site one star, but there seems to be a conspiracy to crucify Jill and Donna and the ICN. Seriously, the reviews don't make sense. This website was one of the first to address the confusing needs of an interstitial cystitis patient. When I was first diagnosed, the people who worked the message boards saved my life. I went for years feeling like I was alone with this blasted condition. I also don't understand the bad treatment quotes. Although I don't visit as often as I used to (because I am feeling better... in part because of the self-help information and encouragement I got from ICN). But I just looked at the site again recently. They appear to have well balanced information, both good and bad. For example, the Interstim, which I considered several years ago, has a couple of different places where people can write good things and bad things. I say bravo to Jill Osborne who has dedicated her life to this miserable disease.